Services Provided:

  • Coordination of care for those patients with Spina Bifida using a multidisciplinary approach
  • Assistance in coordinating prenatal visits with the Neurosurgeon, Urologist, or Nurse Coordinator
  • Coordination of surgical procedures
  • Education on the effects and implications of spina bifida: hydrocephalus, tethered cord, bowel programs, bladder programs, latex allergies, folic acid, skin problems
  • Education on CIC (clean intermittent catheterization)
  • Information through the Spina Bifida Association of America
  • Family support through community services

Team Members:
Pediatric Neurosurgery – Timothy George MD; Nicole Higginbotham CPNP
Pediatric Urology – George Seremetis MD
Pediatric Orthopedic Surgery – Brian Kaufman, MD; Jamie Moore CPNP
Nurse Program Coordinator – Sandra Lopez, RN
Specialty Care Center Nurse – Debbie Sparks, RN
Social Worker – Vanessa O’Dell, LCSW
Clinical Dietitian – Laura Salinas, RD, LD
Physical Therapy – Katie Navarro, PT
Occupational Therapy – Elisa Trentham, OT
Assistive Technology Provider – Louis Oleneick, ATP
Orthotist

Location: Marnie Paul Specialty Care Center, 4900 Mueller Blvd, Austin TX 78723

Evaluation:  Clinic occurs monthly.  On clinic day, the team specialists see patients individually according to their specific needs.  At the end of the day, the team members meet in conference to evaluate and adjust plan of care based on findings.  The nurse coordinator then contacts family to set up any further orders involving labs, X-rays or other studies that have been recommended.

Conditions Treated (partial list):

  • Myelomeningocele w/ or w/o hydrocephalus
  • Spinal lipomas
  • Tethered cord syndrome
  • Caudal regression syndrome