Research

Therapeutics Development Network

The Cystic Fibrosis Therapeutics Development Network is the largest CF clinical trials network in the world. We bring together experts from across the country to evaluate the safety and effectiveness of new CF therapies through clinical studies.

The Therapeutics Development Network (TDN) is a collaborative organization composed of specialists in cystic fibrosis clinical research from a variety of disciplines and institutions:

  • A central coordinating center at Seattle Children’s Research Institute supports clinical trial development, management, and analysis.
  • Ninety-one CF Foundation-accredited care centers with demonstrated expertise in clinical research, called CF Therapeutics Development Centers, recruit study participants and conduct clinical trials.
  • A group of laboratories and interpretation centers, called National Resource Centers, specialize in developing and measuring CF clinical trial outcomes.

The Cystic Fibrosis Foundation is the primary source of funding for the TDN. Additional funding for some clinical studies comes from pharmaceutical companies or government agencies such as the National Institutes of Health and U.S. Food and Drug Administration.

More About the TDN

Sponsors or investigators interested in conducting a study with the TDN can learn more about our processes, tools, and services

Port CF Registry

The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.

Our Research Team

Sarah Schwartz
Research Support Assistant, Pediatric and Adult CF Programs

Sarah Schwartz graduated from the University of Texas at Austin in 2007 with a Bachelor of Liberal Arts degree focusing on Classical Archaeology and Ancient Greek. For eight years, she served as Office Coordinator for Dell Children’s Medical Group Pediatric & Adolescent Dermatology. During this time, she worked in close liaison with the dermatology providers and Research Department staff.
In July 2016, she was recruited to join the Research Support Services department and the CF research team. Sarah manages the CF Foundation’s Patient Registry study for both Adult and Pediatric CF Austin centers, including data capture and entry. She is the first point of contact for our patients and families regarding new and upcoming research studies and clinical trials. She informs patients about all the exciting research opportunities going on in our clinic.
In her spare time, Sarah enjoys creek-walking, arts and crafts, baby animals, and playing piano.

Research Studies for Austin Adult CF & DCMC Pediatric Research Centers

Current CF Studies Chart 

Recently Completed CF Research Studies (2016 – Present)