Patient & Family Resources

CF Patient & Family Resources

Patient & Family Advisory Board

The Patient and Family Advisory Board (PFAB) was started in 2011 to bring patients, families, and providers together to improve the quality of care at the CF Center at Dell Children’s Medical Center.  The PFAB meets bi-monthly or quarterly.  The PFAB develops and creates the annual CF Family Education Day

One of the board’s top priorities is to bring more information to the community. The accomplish this by putting out quarterly newsletters with information about upcoming events, news from the CF Center, and helpful tips and tricks of the trade for patients and families with CF.  They also have created an online community with a Facebook page.

Cystic Fibrosis Foundation, Central Texas Chapter

Our CF Care center has a long and committed partnership with our local Central Texas CF Chapter to support and raise awareness in our community. Each year, the care team volunteers and participates in Chapter lead events such as CF Great Strides. Great Strides is the CF Foundation’s largest national fundraiser. We also recognize and celebrate our CF community at a local, annual CF volunteer appreciation dinner. Our successful and strong partnership was recognized at the North American CF Conference. We will continue to collaborate and be a model of excellence for our community.

CF Foundation Outstanding Partnership Award: 2012 and 2019

For more information or to get involved, contact them:

Central Texas Chapter
3316 Bee Cave Road, Suite A
Austin, TX, 78746

Phone: (512) 338-1744
Fax: (512) 338-9277
Email: central-tx@cff.org
https://www.cff.org/centraltx/

Other Helpful Resources

Medication Assistance Programs

Cystic Fibrosis Foundation

Exercise Resources for CF Patients

CF Recreation Grant

Know Your CFTR Mutations

A Teacher’s Guide to Cystic Fibrosis