Cystic Fibrosis

Cystic fibrosis (CF) is an inherited genetic disease often diagnosed through newborn screening.  Frequently parents don’t know that they are carriers of a CF gene mutation.  People often associate CF with lung problems, but it is more than a respiratory disease. CF actually impacts several different areas of the body.  In fact, the name cystic fibrosis comes from the cysts and fibrosis found in the pancreas, which aids in digestion. Other common areas affected may include the sinuses, intestinal tracts, liver, reproductive system, and sweat glands. A sweat test can be used to aid in the diagnosis of CF. Treatments for CF have advanced rapidly, especially in the last decade and patients with CF continue to live longer and healthier lives.

The Cystic Fibrosis Care Center at Dell Children’s Medical Center provides comprehensive clinical services and education to help pediatric and adult patients and their families with the daily care and treatments involved with CF. The multi-disciplinary CF care team has over 30 members, including physicians, nurses, social workers, dietitians, and respiratory therapists.

Our CF center is a fully accredited pediatric and adult center by Cystic Fibrosis Foundation.

Multi-Disciplinary Approach to CF Care

Our team consists of healthcare providers from various disciplines assembled to provide comprehensive care. The CF team meets regularly to discuss individual treatment plans with a collaborative approach. We also meet weekly to discuss ongoing quality improvement initiatives to provide the best service possible to our patients.

Continuum of Care

Patients do not outgrow our commitment to care for them. We offer both a pediatric and adult clinic. We have also implemented a developmental education model meant to provide age-appropriate education to our pediatric patients and their families to help transition them into our adult care setting. We aim to empower patients to take increasing responsibility for their health as they progress through adolescence so that they are prepared for the level of autonomy our adult program expects.

Referrals

Cystic Fibrosis Department Assistant – Brittany Outterson

512-324-9999 xt. 86293

Fax: 512-324-0373