Patient and Family Resources

Community Resources

  • Texas Parent to Parent
      • Texas Parent to Parent (TxP2P) is a parent-led and parent-driven organization that works to improve the lives of Texas children and adults with disabilities, chronic and mental health conditions and other health care needs. TxP2P offers many services including parent-to-parent support, education, advocacy resources, and more.
  • Autism Society of Texas
      • The Autism Society of Texas connects families and people to helpful resources throughout Texas. They offer support groups, education, employment resources, and advocate to Congress for the rights of people with disabilities.
  • Easter Seals
      • Easterseals is a nonprofit organization focused on healthcare for Americans living with disabilities. Easterseals provides many services that include autism services, early intervention, and inclusive childcare
  • Arc of the Capital Area
      • Arc of the Capital Area has been serving people with intellectual and developmental disabilities since 1949. They provide education services, pet therapy, and case management, along with many others.
  • Disability Rights Texas
    • Disability Rights Texas is committed to protecting and fighting for the rights of people with disabilities through the legal system. They can provide legal assistance and inform people of their rights.

 

Additional Support Services

  • Early Childhood Intervention
      • Early Childhood Intervention (ECI) is a state funded program that can provide services to children with disabilities up to 36 months of age. There are many services provided that are at no direct cost to you, including evaluation, case management, and translation/interpretation services
  • Navigate Life Texas
      • Navigate Life Texas is a project dedicated to helping inform parents of children with disabilities about healthcare, government programs, transition to adulthood, and insurance. The program was created by parents and most of the content on the website is written by a parent. 
  • ConnectATX
      • ConnectATX is a resource guide for use by anyone to find helpful services for a variety of problems. You can find information on food resource, financial assistance, health, and much more — all displayed on a map.
  • United Way
    • United Way is committed to fighting poverty in the Austin community. Among their many services, they run the Family Connects program which provides an in-home nurse visit for families with newborns and partner with Austin ISD to create high-quality Pre-K programs.

 

Self Care Reminder

  • After a child’s initial diagnosis, feelings of grief and sadness are often common. Making time for yourself might not seem like a priority when dealing with your child’s complex medical needs. However, prioritizing your physical and emotional needs will result in better care for your child. Remember to eat, sleep enough, spend time with friends, and ask for help if you need it!

For more questions/information: you can call our social work team at 512.324.9999 extension 88960.