Welcome to Project LAUNCH!
LAUNCH: Leading Adolescents with Sickle Cell Disease to Understand, Navigate and Claim Adult Healthcare
Our Mission is to prepare teenagers with Sickle Cell Disease to transition to adult healthcare safely and successfully. Teens with Sickle Cell Disease (SCD) face unique healthcare challenges as they become adults, such as understanding the complications of SCD, learning medications, and navigating a complex healthcare system. This transition can be stressful and overwhelming. We are here to help!
Project LAUNCH is an evidence-based transition program that aims to address these challenges and equip all SCD teens, starting at age 12, to feel confident about advocating for their healthcare.
Did You Know:
- Sickle Cell Disease currently affects 100,000 Americans and is the most common genetic blood disorder.
- A huge barrier to transition for SCD adolescents is anxiety about losing trusted providers, fear of how they will be perceived, and fear of being treated as adults without adequate preparation or support.
- The rate of acute hospitalizations and re-hospitalizations for patients with SCD rises sharply between the ages of 18 to 30 years old.
With this information, Project LAUNCH is committed to better prepare teens with SCD to enter the adult healthcare system. We cannot do it alone. We need YOU, our patients and families to help LAUNCH you to success.
Read our Project LAUNCH Family Letter here!
Frequently Asked Questions:
What will my child learn in Project LAUNCH?
They’ll learn to understand their sickle cell disease: the way it affects their bodies, the medical complications they could have, and the treatment and medications they need to manage the disease. They’ll learn how to talk to doctors and nurses on their own, how to schedule appointments and use health insurance, and who to call when they have questions. They’ll learn to take responsibility for their own health!
How will they learn these things?
Project LAUNCH will soon have its own website where teens can learn all about sickle cell through educational modules that can be accessed at your appointment and at home. The Project LAUNCH team will be providing all educational components online or in person to make sure you are prepared.
See our very first Project LAUNCH educational module video here!
At what age will Project LAUNCH begin?
We will start Project LAUNCH education around the age of 12 for all patients with SCD.
At what age will the patient be transitioned to an adult hematologist?
Patients will be transitioned around the age of 18, this age may vary based upon patient needs and their individualized transition plan.
Will I have extra appointments?
No, but expect that your regular appointments at the CBCC may be a little longer. Teens will receive information from several providers as part of their usual appointments. Also, we may offer telemedicine visits between appointments to help reinforce the education and skills your child learned at the previous appointment.