Our sickle cell team at the Children’s Blood & Cancer Center (CBCC) of Dell Children’s Medical Center in Austin, TX is dedicated to the prevention of complications in children living with sickle cell disease and sickle cell-related blood disorders with an emphasis on providing the most up-to-date treatment recommendations. We are pleased to host a monthly comprehensive, multi-disciplinary sickle cell clinic that was developed to provide our patients an opportunity to be seen by multiple providers in one appointment.
How We Help Kids with Sickle Cell Disease
Children with sickle cell disease require ongoing, comprehensive care. Our services include management of acute illnesses, such as pain crises, infections and fevers, anemia, and ongoing education and advocacy for the child and family. We also watch for chronic complications, such as pulmonary disease, eye problems, heart complications, and bone and joint problems. We are pleased to now offer the LAUNCH transition program, which aims to prepare teenagers with Sickle Cell Disease to transition to adult healthcare safely and successfully. This includes:
- Genetic counseling of hemoglobinopathy identified by newborn screen, including sickle cell trait
- Comprehensive annual evaluations, including education about pain management, spleen problems, infections and pulmonary complications
- Transcranial Doppler to identify patients at risk for stroke
- Hydroxyurea therapy
- Chronic transfusion and iron chelation management
- Access to support services, including school visits to educate teachers and school nurses about the needs of the school-aged child with sickle cell disease
- Activities to promote individual self-expression and learn coping skills
- Opportunities to meet fellow families with similar experiences
Our ultimate goal is to provide the entire family with the education and tools necessary to manage your child’s disease over their lifespan, enabling each child to remain as healthy as possible while fulfilling his or her potential.