Milagros
Finding support in a time of need is one of the most important things a parent can do. Milagros, which means “miracle” in Spanish, is a support group for parents of children with heart disease. The group meets monthly to share information and provide support. For more information, visit the Milagros Web site at www.milagrosaustin.com.
Congenital Heart Information Network (CHIN)
Parents can also find support through the Congenital Heart Information Network. Their online community offers a chat forum, a family room to share thoughts and experiences, e-mail discussion groups and more. To learn more about this special organization, visit www.tchin.org.
Web and Educational Resources
Many Web sites can provide you and your family with additional information on cardiac care and pediatric cardiology. Visit the following sites to find out if they can help your family.
American Heart Association
The American Heart Association offers an extensive database of links to other healthy heart sites, information on support groups, plus an area for the kids where they can learn more about "Heartpower".
Congenital Heart Information Network
CHIN is an international, non-profit organization that provides reliable information, support services and resources to families of children with congenital and acquired heart disease.
E-mail Lists Relating to Cardiac Care
These sites provide a forum for interested parties to electronically discuss issues and receive information on different aspects of cardiac health care. To subscribe to these free services, simply send an e-mail message to the address below and you will then be given further instructions. Pediatric Cardiology: heart@medisun.ucsfresno.edu
Child Life
Specially trained Child Life Specialists help cardiac patients and their families cope with the emotional and psychological stress of hospitalization, illness, surgery and medical treatment. Our specialists encourage patients to communicate their feelings of fear, frustration and/or anger in a non-threatening environment.